truepenny: artist's rendering of Sidneyia inexpectans (lionsmane)
What the respiratory therapist will neglect to mention about your little Cthulhu machine: Getting the mask to seal is not automatic. Or easy. Or sometimes even possible.

What the respiratory therapist will also neglect to mention: The straps of the mask have a tendency to self-adjust. This is not a hidden features. This is a STUNNINGLY POOR DESIGN CHOICE.

What you will learn the hard way: Even if you get the mask to seal initially, odds are still good you will wake up in the middle of the night to discover it has slipped. At which point, odds become almost catastrophically poor that you will be able to get it to reseal without coming all the way awake, and also thrashing about a good deal. Swapping one mask for another may actually help, but that's a delicate and complex operation which you cannot turn the light on for, because your poor spouse is trying to sleep. ALso, see above re: AWAKE.

What the respiratory therapist WILL tell you when you ask for help: A water-based lubricant makes it easier to achieve a seal.

What the respiratory therapist WON'T tell you: Water-based lubricant dries out after about two hours, and there you are back to square fucking one.

What the Internet will tell you: A + D Ointment is great for getting a mask to seal!

What the respiratory therapist will tell you when you ask: Yes, it is, but it also eats your mask. OIL-BASED, LOSER.

What the respiratory therapist will also tell you: You might as well give it a try. If it works, you can decide if you want to buy masks more often.

What you already know: Your insurance will only cover a new mask every six months. Because only slackers would need one more often.

What you will learn the hard way: A + D does indeed help with achieving a seal. However, IT dries out after about 4 hours, and after that it is just as useless as anything else. Also, it leaves you feeling kind of greasy.

What will make you mad enough to chew nails and spit bullets: Saying fuck it all and turning off the machine for the rest of the night is not the answer. It only results in feeling like death on fried styrofoam in the morning.

What will make you throw in the towel for the night : The realization that, instead of getting back to sleep, you're writing this blog post in your head.
truepenny: artist's rendering of Sidneyia inexpectans (lionsmane)
1. Yesterday I posed with a giant inflatable colon to promote colorectal cancer awareness. Most surreal Thursday morning ever.

Yes, a colonoscopy is not the most fun you will ever have, but speaking as a friend of the awesome Jay Lake and as someone who has had a polyp removed from her colon and will be going back for another screening in a couple years, colon cancer needs to be beaten to death with a stick.

2. Liz Bourke has reviewed The Goblin Emperor for Tor.com. As an author, positive reviews are great, but what you really want are good reviews, reviews that understand the book you tried to write and convey it well. This is that kind of review.

3. I am currently undergoing all kinds of adjustments to my . . . I don't even know what to call it. The victory conditions for sleep? They're shipping me a different mask to try with the little Cthulhu machine. It will still look like a disastrous attempt at an elephant costume, but hopefully it will (a) be more comfortable and (b) seal to my face better. Yes, I have seen Aliens. Please don't remind me.

But ALSO, my sleep doctor and I are trying to rejigger my RLS medications, because I'd gotten to the point where it was requiring way too much narcotics to club the damn thing into unconsciousness. The new medication is definitely working, so that's a plus, and I am re-weaning myself off the narcotics. Yes, there has been just a tiny bit of withdrawal. I haven't gone off them entirely yet, but I am working on it because I hate the damn drugs. I am hoping that when I can finally stop taking them, I will be less tired and also that my creativity will come back again.

It did come back in December and January before drying up again in February, and the creepy thing is that I can actually articulate the difference. When everything is working correctly (i.e., what I thought of as "normal" until the clusterfuck began in 2010), there are words in my head. Well, there are always words in my head. I am like Hector Puncheon, who "usually thought articulately, and often, indeed, conversed quite sensibly aloud with his own soul." So maybe it's more accurate to say that the staus quo ante, to which I desire ardently to return, is that there are stories forming, word by word. Because there are words, separate from my internal narration/dialogue. They form themselves into sentences, and the sentences form narratives. When it was working right, I would frequently "get" sentences from Booth out of nowhere.

Now, I can force prose. There are always days when you have to. But it's not the same, at least from my side of the proscenium, and I really didn't realize what I'd lost until I had it back. I didn't realize that there was a wellspring, that I wasn't imagining that writing used to involve joy instead of just grim desperation.

I had it back, and then the RLS went bad, and it was gone again. I knew that bad RLS nights correlated with low or nonexistent creativity, and now I know what it's attacking. I know that there's a thing that should be there that isn't. And I can only hope that it can grow back. Again.
truepenny: artist's rendering of Sidneyia inexpectans (lionsmane)
1. This guy's art is AMAZING.

2. The thing I forgot to mention in my previous post is that I now have a little weather prediction center in my right ankle that FAITHFULLY lets me know when the weather is changing. You know, just like characters in books always do. I must tell you, however, that it is not actually as much fun as you might think.

3. I love this proof that cats have always been cats.

4. I have rubbed a raw spot inside my nose with my sleep apnea tentacles. DON'T ASK ME HOW I DON'T EVEN KNOW.

5. If you are in need of laughter today, this site made me laugh so hard I nearly ended up on the floor.
truepenny: artist's rendering of Sidneyia inexpectans (porpentine: snow)
1. For anyone looking for verisimilitude, below about fifteen degrees Fahrenheit is too cold to ride. (Below zero is too cold for ANYTHING.)

2. Our Formerly Feral Ninja was well taught by her Feralista Mama. On Saturday I found her with a dead mouse (!) in our bedroom (ZOMG!!!11!1!). She hadn't eaten it yet, thank goodness (because the only thing worse than a dead mouse is a dead regurgitated mouse, don't ask me how I know), but she was definitely giving me the fix my toy, biped look. I did not oblige her.

3. My dear friend and frequent enabler, [livejournal.com profile] heresluck, gave [livejournal.com profile] mirrorthaw and me Season One of Elementary this holiday season. It took us a little more than a week to watch the whole thing, plus the special features (this is why it's a good thing I don't like many TV shows, because I am the opposite of will-power). I liked it a bunch. I liked the games it was playing with the source material; I adored Jonny Lee Miller, Lucy Liu, and Aidan Quinn (and Jon Michael Hall also!, although his character is not in the slightest canonical). In some ways I liked it more than Sherlock, in some less. I may make a longer post about it at some point, but the thing I actually wanted to note here is not directly related to the show; it's something I noticed in the special features, something I knew but that it's good to be reminded of. It is very difficult to give an interesting answer to a general question. The actors and writers were getting thrown these slow underhand lobs over and over (you could tell by the answers they were giving), and it just didn't give them anything interesting to say (especially because they had to avoid spoilers). There was nothing they could hit out of the park. The set designer and the prop guy and the editor and the composer, on the other hand, who could talk about very specific details, were awesome. The composer actually demonstrated the way he puts music to a scene, which was very cool, but the best bit for me was the prop guy, who said, "Every prop has a ghost." By which he meant that, once you've established a prop, an object with which an actor interacts, it's a visual cue that tells its own part of the story without anything needing to be said. It was a tiny interview, but it was brilliant.

But nobody asked Jonny Lee Miller, in these tiny special feature interviews, specific questions about the choices he was making as an actor. Nobody asked the writers to talk specifically about how they wrote a particular episode, or how they decided what they were going to do with the bits of canon they chose to interpolate. (And there are some very interesting and specific questions that could be asked.) And so they couldn't really get beyond platitudes, like the platitudes Crash makes Nuke rehearse in Bull Durham. And it's worth remembering as a rule of thumb: to get interesting answers, you have to ask specific questions.

4. Things are better with my little Cthulhu machine. We tied the tentacles to the headboard with twine, and I can now roll over without encoiling myself. I still hate the fucker, but that's a different problem.

5. The present given me by 2013, like a cold dead squirrel on my pillow, is migraines! I now get migraines as part of my PMS package. Did you know, there is nothing cool about migraines at all? Nothing works on them except specific drugs, and those specific drugs can cause heart attacks and strokes by the inherent nature of what they are. (The first one I tried also made me so light-headed and woozy that I was no better off than I'd been with the migraine and its wicked little nail gun.) And mine last for days.

They aren't bad migraines. Even without the drugs, I'm not incapacitated. I'm not nauseated. The pain is, comparatively, not as bad as my menstrual cramps even now (and not even in the same league as the menstrual cramps I had in college, which routinely hit too serious for numbers).

But dear freaking Jesus is it annoying.
truepenny: artist's rendering of Sidneyia inexpectans (lionsmane)
Thus far I have woken up:
  • once dreaming of vaccuum cleaners only to discover the seal on the damn mask had slipped
  • once with the tubing wrapped around my torso like a pageant sash
  • somewhere between "several" and "countless" times with the tubing wrapped around my neck like a squamous or possibly batrachian version of "Porphyria's Lover"


Things are getting better. I'm not yet noticing any improvement in my general level of fatigue, but I no longer feel like my little Cthulhu machine is actively sabotaging me. So that's something.
truepenny: artist's rendering of Sidneyia inexpectans (ws: hamlet)
I didn't go to any costume parties, and I haven't been trick-or-treating in almost thirty years, but I can truthfully say that this year I was the Bride of Frankenstein for Halloween.

Expandin which my Halloween was weirder than yours )

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